Brain Tumor Information, Services, and Support

The American Brain Tumor Association is the nation’s oldest nonprofit organization dedicated to brain tumor education, support and research. In 1973, the ABTA was founded by two mothers. 

The ABTA is a steadfast advocate on behalf of the brain tumor community in the United States, and we are here to help patients, caregivers, and their loved ones as they navigate the brain tumor journey.

National Brain Tumor Society (NBTS) unrelentingly invests in, mobilizes, and unites our community to discover a cure, deliver effective treatments, and advocate for patients and care partners

 We believe we can move the needle faster and drive more new discoveries by influencing and funding research, and actually bringing together policy makers, researchers, clinicians doctors and industry organizations to collaborate and share information in order to find better treatments and a cure for brain tumors. 

CBTF is the Nation's Leader in Quality of Life Programs for Families with Children Affected by Brain and Spinal Cord Tumors ·  

Mission

 Improving the treatment, quality of life and the long-term outlook for children and families affected by a brain or spinal cord tumor. 

Since 1991, the Pediatric Brain Tumor Foundation’s family support, research funding, and advocacy have led the way in ending the childhood cancer community’s biggest crisis: pediatric brain tumors.   Dedicated wholly to addressing this rare but devastating disease and guided by the experiences of patients, survivors, their parents, and siblings, we are the only organization to meet families’ needs along every step of their cancer journey. 

 The Musella Foundation For Brain Tumor Research & Information, Inc, a 501(c)3 nonprofit public charity dedicated to helping brain tumor patients through emotional and financial support, education, advocacy and raising money for brain tumor research. 

Copayment Assistance Program - Limited Resources

The Brain Tumor Network (BTN) is a navigation resource for adult patients and caregivers in the USA seeking information about brain tumor treatment options including clinical trials. This unbiased resource is provided at no cost to patients, caregivers, or healthcare professionals.

 Guiding Patients

and Empowering Care

NCI supports clinical trials studying new and more effective ways to detect and treat cancer.  Find brain tumor-related treatment clinical trials from NCI's list of cancer clinical trials now accepting patients. 

Clinical Trials to Treat Brain Tumors

  The Ivy Brain Tumor Center at the Barrow Neurological Institute is a nonprofit translational science initiative.   Our research program is singularly focused on discovering new therapies for brain tumor patients through a broad portfolio of pharmacodynamic- and pharmacokinetic-driven clinical trials, combining industry-partnered drug development with the nation’s largest operative brain tumor volume. 

 Enhancing patient outcomes by expanding FDA-approved treatment modalities and fueling research in the pharma/bio/life sciences, device & diagnostic industries and by closing the existing GAP from initial diagnosis to IMMEDIATE AND EXPANDED ACCESS to specialists, researchers, advanced & innovative treatments, clinical trials and critical care with the ultimate goal of improvingTh patient outcomes through updating and improving WHO & NCCN Guidelines and clinical practices related to Standard of Care for brain cancer patients. 

OurBrainBank is an innovative, patient-led movement designed to move glioblastoma from terminal to treatable, powered by patients.

Our pilot study used a free app that patients or caregivers used to track symptoms, share data with clinicians, and donate data to medical research. 

Stay tuned for our next steps.

Read our GBM Bill of Rights and print out a copy to take to your doctor.

 Cancer Help Desk combines compassion, expert knowledge, and evidence-based science to offer personalized education, resources, and treatment choices to anyone dealing with cancer. We act as a neutral liaison bringing people with cancer, oncology providers, and researchers together to dynamically improve cancer care. We do this with urgency, respect, and transparency. 

The My STORI app was developed for brain tumor patients and caregivers. Learn about how this free mobile app can help you track and manage your symptoms and self-care activities. 

The Glenn Garcelon Foundation is a 501(c)(3) non-profit organization which exists to improve the quality of life of brain tumor survivors, caregivers and their families by providing emotional and financial support.

 Mission4Maureen, committed to Maureen’s belief that “everyone can do something”, assists qualifying brain cancer patients with everyday expenses. Assistance may come in the form of rent or mortgage payments, help with the electric or gas bill, or even gift cards to a local supermarket to help with the cost of food and medicines. This simple goal is an ambitious challenge for any charity. 

PAF is a national 501(c)3 organization that provides direct case management services and financial assistance to patients and caregivers. These include helping people navigate the health care system, working with health care providers, payers and employers to assure that patients have access to affordable care, financial and co-pay assistance and teaching self-advocacy to patients and caregivers.

 The PAN Foundation’s FundFinder app is a free resource that provides this information in one place and notifies you when a disease fund opens at any of the charitable patient assistance foundations.

FundFinder also provides a listing of patient advocacy organizations for each disease state so users can find additional support services. 

CFAC is a coalition of financial assistance organizations joining forces to help cancer patients experience better health and well-being by limiting financial challenges, 

NeedyMeds is a 501(c)(3) national non-profit that connects people to programs that will help them afford their medications and other healthcare costs.

How we do it: NeedyMeds, a national non-profit, achieves its mission by providing information on healthcare programs, offering direct assistance and facilitating programs.

Patient assistance programs are run by pharmaceutical companies to provide free medications to people who cannot afford to buy their medicine. RxAssist offers a comprehensive database of these patient assistance programs, as well as practical tools, news, and articles so that health care professionals and patients can find the information they need. All in one place.

 Facing cancer is hard. Having to travel out of town for treatment can make it even harder. Yet the American Cancer Society has a place where cancer patients and their caregivers can find help and hope when home is far away - an American Cancer Society Hope Lodge. 

  Joe’s House is not an actual house, but a nonprofit organization that helps cancer patients and their families find a place to stay when traveling away from home for medical treatment.  

Mercy Medical Angels removes the barrier to medical care with transportation on the ground with gas cards, bus and train tickets and in the air with flights flown by volunteer pilots and the commercial airlines.  

Mercy Medical Angels is the largest charitable medical transportation system in the world. Last year, they provided more than 24,000 free patient trips to clinical care

Air Charity Network is a charitable organization that provides access for people in need who are seeking free air transportation to specialized health care facilities or distant destinations due to family, community, or national crisis.

MISSION

To coordinate free air transportation,

through volunteer pilots, for passengers with medical

or humanitarian needs far from home.

Free Medical and Compassion Flights for Patients and Veterans

We provide free medical flights to people who need to access medical care that may be too far to get to by car.

 I-Ride Transit offers fixed routes, medical transportation, and on-demand response transit. Our professional, courteous drivers will be happy to drive you to medical and therapy appointments, local wellness and senior centers, adult day care centers, shopping, and more. 

A Painless Way to Organize Help

With the Help Calendar, you can post requests for support - things like meals for the family, rides to medical appointments, or just stopping by to visit.

Members of your community can quickly find ways to help, and Lotsa will send reminders automatically so nothing falls through the cracks.

A CaringBridge website is a personal health journal, rallying friends and family during any type of health journey. Start a free CaringBridge website today.
 

Provides clear, comprehensive palliative care information for people living with a serious illness. 

Provides an overview of what a patient and his/her family and caregivers may expect when facing a progressive, life-threatening brain tumor. 

 Explains palliative care in cancer, which may be provided at any point during cancer care, from diagnosis to the end of life 

Leads and mobilizes the transformation of care delivery to ensure equitable access to high quality interdisciplinary, person-centered care for those living with serious illness.  

  Promotes, protects and advances the highest quality health

 care at home. 

 Educates the public and health care professionals about death, dying and grief.

Explains  some similarities and differences between palliative care and hospice care.