Resources

The American Brain Tumor Association is the nation’s oldest nonprofit organization dedicated to brain tumor education, support and research. In 1973, the ABTA was founded by two mothers. 

The ABTA is a steadfast advocate on behalf of the brain tumor community in the United States, and we are here to help patients, caregivers, and their loved ones as they navigate the brain tumor journey.

National Brain Tumor Society (NBTS) unrelentingly invests in, mobilizes, and unites our community to discover a cure, deliver effective treatments, and advocate for patients and care partners

 We believe we can move the needle faster and drive more new discoveries by influencing and funding research, and actually bringing together policy makers, researchers, clinicians doctors and industry organizations to collaborate and share information in order to find better treatments and a cure for brain tumors. 

CBTF is the Nation's Leader in Quality of Life Programs for Families with Children Affected by Brain and Spinal Cord Tumors ·  

Mission

 Improving the treatment, quality of life and the long-term outlook for children and families affected by a brain or spinal cord tumor. 

The Brain Tumor Network (BTN) is a navigation resource for adult patients and caregivers in the USA seeking information about brain tumor treatment options including clinical trials. This unbiased resource is provided at no cost to patients, caregivers, or healthcare professionals.

 Guiding Patients

and Empowering Care

 The Musella Foundation For Brain Tumor Research & Information, Inc, a 501(c)3 nonprofit public charity dedicated to helping brain tumor patients through emotional and financial support, education, advocacy and raising money for brain tumor research. 

Copayment Assistance Program - Limited Resources

NCI supports clinical trials studying new and more effective ways to detect and treat cancer.  Find brain tumor-related treatment clinical trials from NCI's list of cancer clinical trials now accepting patients. 

Clinical Trials to Treat Brain Tumors

 Contact our Care Support Team, staffed by caregiving experts, to help you find the right information you need to help you navigate your complex caregiving challenges. 

It’s Free!  

A CaringBridge website is a personal health journal, rallying friends and family during any type of health journey. Start a free CaringBridge website today.

A Painless Way to Organize Help

With the Help Calendar, you can post requests for support - things like meals for the family, rides to medical appointments, or just stopping by to visit.

Members of your community can quickly find ways to help, and Lotsa will send reminders automatically so nothing falls through the cracks.

GriefShare is a friendly, caring group of people who will walk alongside you through one of life’s most difficult experiences. You don’t have to go through the grieving process alone.

Find a GriefShare support group or event near you

NeedyMeds is a 501(c)(3) national non-profit that connects people to programs that will help them afford their medications and other healthcare costs.

How we do it: NeedyMeds, a national non-profit, achieves its mission by providing information on healthcare programs, offering direct assistance and facilitating programs.

Imerman Angels’ mission is to provide comfort and understanding for all cancer fighters, survivors, previvors and caregivers through a personalized, one-on-one connection with someone who has been there.

We envision a world where cancer is not a solitary experience.

PAF is a national 501(c)3 organization that provides direct case management services and financial assistance to patients and caregivers. These include helping people navigate the health care system, working with health care providers, payers and employers to assure that patients have access to affordable care, financial and co-pay assistance and teaching self-advocacy to patients and caregivers.

 The PAN Foundation’s FundFinder app is a free resource that provides this information in one place and notifies you when a disease fund opens at any of the charitable patient assistance foundations.

FundFinder also provides a listing of patient advocacy organizations for each disease state so users can find additional support services. 

The My STORI app was developed for brain tumor patients and caregivers. Learn about how this free mobile app can help you track and manage your symptoms and self-care activities. 

OurBrainBank is an innovative, patient-led movement designed to move glioblastoma from terminal to treatable, powered by patients.

Our pilot study used a free app that patients or caregivers used to track symptoms, share data with clinicians, and donate data to medical research. 

Stay tuned for our next steps.

Read our GBM Bill of Rights and print out a copy to take to your doctor.

  The Ivy Brain Tumor Center at the Barrow Neurological Institute is a nonprofit translational science initiative.   Our research program is singularly focused on discovering new therapies for brain tumor patients through a broad portfolio of pharmacodynamic- and pharmacokinetic-driven clinical trials, combining industry-partnered drug development with the nation’s largest operative brain tumor volume. 

 Facing cancer is hard. Having to travel out of town for treatment can make it even harder. Yet the American Cancer Society has a place where cancer patients and their caregivers can find help and hope when home is far away - an American Cancer Society Hope Lodge. 

Mercy Medical Angels removes the barrier to medical care with transportation on the ground with gas cards, bus and train tickets and in the air with flights flown by volunteer pilots and the commercial airlines.  

Mercy Medical Angels is the largest charitable medical transportation system in the world. Last year, they provided more than 24,000 free patient trips to clinical care

 I-Ride Transit offers fixed routes, medical transportation, and on-demand response transit. Our professional, courteous drivers will be happy to drive you to medical and therapy appointments, local wellness and senior centers, adult day care centers, shopping, and more.